Changes a comin'

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CCWMichael
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Changes a comin'

Post by CCWMichael » April 16th, 2018, 8:43 pm

This past week has been a whirlwind for me.
In short, I am about to undergo some major surgery with a few days in the hospital and recovery at home for a few weeks.
Biopsies (taken today) will determine what occurs after that.
Strangely enough, I am at peace with all of it .... so far.
I give all the glory to my Savior for that.
My wife is the typical worried supportive wife --- but mine.
However, my daughter is not doing so well with her daddy not doing well. And, all she knows ids I am having a big surgery.
She has said many things to me the past week that have made me melt and some of them was her worry we would not be able to go camping, fishing, to Hershey Park, Liberty football games, and so many other small things we do together.
I have lived by Scripture and Strong Fathers - Strong Daughters, by Meg Meker.
It is now a double edged sword during this time for both her and I.
I understand prayers will come my way and my wifes way and please send them.
But, I would think any parent would understand I really want the bulk of the prayer power going towards my daughter --- Amber.

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Purple Haize
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Re: Changes a comin'

Post by Purple Haize » April 16th, 2018, 8:46 pm

Dude. Prayers and everything
Suck on my Funk and Wagnalls! - Unknown
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ALUmnus
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Re: Changes a comin'

Post by ALUmnus » April 17th, 2018, 9:33 am

How old is Amber?
Image

"I always wanted to be the hero of all squirrels; I just thought it'd never happen" - Quack

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Sly Fox
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Re: Changes a comin'

Post by Sly Fox » April 17th, 2018, 12:53 pm

Wow, praying right now as I read this up in Seattle. God is in control.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » April 17th, 2018, 6:47 pm

ALUmnus wrote:How old is Amber?

Thank you for asking. Amber is a 14 Down girl.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » April 17th, 2018, 6:50 pm

Purple Haize wrote:Dude. Prayers and everything
Thank you kindly. I always feel like a Nigerian internet banker when I say that.

Just found out today the surgery is on May the 4th and I should be back to work the first week of July.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » April 17th, 2018, 6:52 pm

Sly Fox wrote:Wow, praying right now as I read this up in Seattle. God is in control.
Yes, He is in control. I thank you kindly for the prayers . It is comforting to know as they will help.

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Class of 20Something
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Re: Changes a comin'

Post by Class of 20Something » April 18th, 2018, 12:43 pm

CCWMichael wrote:
Purple Haize wrote:Dude. Prayers and everything
Thank you kindly. I always feel like a Nigerian internet banker when I say that.

Just found out today the surgery is on May the 4th and I should be back to work the first week of July.
Dude! Star Wars Day?!?! May The Fourth be with you, always.

Seriously, you've got an army of prayer warriors around you.
Bruce Coslet wrote: We can’t run. We can’t pass. We can’t stop the run. We can’t stop the pass. We can’t kick. Other than that, we’re just not a very good football team right now.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » April 19th, 2018, 6:14 pm

Class of 20Something wrote:
CCWMichael wrote:
Purple Haize wrote:Dude. Prayers and everything
Thank you kindly. I always feel like a Nigerian internet banker when I say that.

Just found out today the surgery is on May the 4th and I should be back to work the first week of July.
Dude! Star Wars Day?!?! May The Fourth be with you, always.

Seriously, you've got an army of prayer warriors around you.
Classic! Thank you for the chuckle. And, thank for for being part of the Army.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » May 20th, 2018, 9:48 am

Whew ...
Surgery was May 4 and I was released from the hospital the 18th.
Short story
Another surgery in about six weeks
Stage three cancer to be treated with chemo.
Keep the prayers comin .....

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Sly Fox
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Re: Changes a comin'

Post by Sly Fox » May 20th, 2018, 3:31 pm

Praise God for his healing hand thus far. Still praying now more precisely in Texas!

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Re: Changes a comin'

Post by flamehunter » May 20th, 2018, 7:55 pm

Will keep you in prayers for healing. Rest in God's hands and allow him to use this in ways you can't imagine.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » May 21st, 2018, 1:52 pm

Sly and Flame I thank you.
After my two week stay I can testimony a multitude of ways I saw him work and work through others.
I could eaily spen a few hours recounting my experiences.
I just wonder how many of some of the people I saw him working through realized they were a vessel at that time.
Every moment counts as we never know the one that will be of value to another.

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Sly Fox
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Re: Changes a comin'

Post by Sly Fox » May 22nd, 2018, 9:10 am

God uses these experiences in mighty ways to not only the one going through the trauma but also all of those with whom you encounter. Godspeed!

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Re: Changes a comin'

Post by LUDad » September 25th, 2018, 12:48 pm

How are you doing? Any updates?

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » September 26th, 2018, 1:42 pm

LUDad wrote:How are you doing? Any updates?
Thank you for asking.
Radiation and Chemotherapy pills have been completed for over two weeks.
Awaiting the start of ported chemotherapy which begins October 9. Of course right before the next home game so I hope I respond well. They delay was put in place so I can recover from radiation/chemo to better be able to mange ported chemo.
Of course many side effects, but I am working through them.
Feeling much better after the gap in treatment which makes me less desire ported chemo cause' I know some things I do not desire may occur and I don't like to fell unwell --- but, it is what it is.
I am attempting to work while being treated and have only needed about a day every work week I needed to stay home so all thing considered that is going well and I hope it continues while doing the ported chemo.
The ported chemo will last into January some time.

The key --- staying focused on the Lord, maintain positive thoughts and outlook, and "never give in, never, never, never, never" Winston Churchill

LUDad
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Re: Changes a comin'

Post by LUDad » September 26th, 2018, 5:11 pm

CCWMichael wrote:
LUDad wrote:How are you doing? Any updates?
Thank you for asking.
Radiation and Chemotherapy pills have been completed for over two weeks.
Awaiting the start of ported chemotherapy which begins October 9. Of course right before the next home game so I hope I respond well. They delay was put in place so I can recover from radiation/chemo to better be able to mange ported chemo.
Of course many side effects, but I am working through them.
Feeling much better after the gap in treatment which makes me less desire ported chemo cause' I know some things I do not desire may occur and I don't like to fell unwell --- but, it is what it is.
I am attempting to work while being treated and have only needed about a day every work week I needed to stay home so all thing considered that is going well and I hope it continues while doing the ported chemo.
The ported chemo will last into January some time.

The key --- staying focused on the Lord, maintain positive thoughts and outlook, and "never give in, never, never, never, never" Winston Churchill
Proud of you man! Coworker recently underwent BC chemo, a neighbor was recently treated at MD Anderson for stage 4 non-Hodgkin's lymphoma and I was diagnosed with PC almost a year ago (watchful waiting). So I have been doing a lot of research. I'm in section 214. Would like to say hi next home game if possible.

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Sly Fox
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Re: Changes a comin'

Post by Sly Fox » September 26th, 2018, 6:06 pm

That is great to hear that your body is holding through the treatments! Still praying for you. If any of you guys wind up coming to MD Anderson for treatments, let me know and we can meet up.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » September 28th, 2018, 11:10 am

LUDad wrote:
CCWMichael wrote:
LUDad wrote:How are you doing? Any updates?
Thank you for asking.
Radiation and Chemotherapy pills have been completed for over two weeks.
Awaiting the start of ported chemotherapy which begins October 9. Of course right before the next home game so I hope I respond well. They delay was put in place so I can recover from radiation/chemo to better be able to mange ported chemo.
Of course many side effects, but I am working through them.
Feeling much better after the gap in treatment which makes me less desire ported chemo cause' I know some things I do not desire may occur and I don't like to fell unwell --- but, it is what it is.
I am attempting to work while being treated and have only needed about a day every work week I needed to stay home so all thing considered that is going well and I hope it continues while doing the ported chemo.
The ported chemo will last into January some time.

The key --- staying focused on the Lord, maintain positive thoughts and outlook, and "never give in, never, never, never, never" Winston Churchill
Proud of you man! Coworker recently underwent BC chemo, a neighbor was recently treated at MD Anderson for stage 4 non-Hodgkin's lymphoma and I was diagnosed with PC almost a year ago (watchful waiting). So I have been doing a lot of research. I'm in section 214. Would like to say hi next home game if possible.
Thank you. I would like to meet as well. We also tailgate in the Yellow lot. Depending on your arrival time we can introduce about anywhere. We sit in 105 as a reference point, but at some point I will forwards my cell to via private message.
PC is unique. I saw my grandmother travel that road so I have at least my personal perspective.
My father had surgery for neo blastoma the same day I had my first surgery.
He is now under palliative care.
BC runs in my family as well, and other cancers.
Not sure if it unfortunate or a blessing but I certainly have had exposure to cancer.

Sly ... I hope I do not end up travelling to Texas for care ....
The cancer center I am going through is associated with Johns Hopkins so I am confident what can be done is being done.
I can't state enough from all I hear my prognosis is good.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » October 9th, 2018, 7:07 pm

Update.

Went in for my first ported chemotherapy today. All was going well. I stood up to take a picture of the view I had from my room and I occluded. They fixed it and I carried on. I went to the rest room and occluded again. They provided corrective action. It finall came to the pump and when I would stand there was no flow through the pump.
I was sent for a dye test and it turns out I have a kink and a hole in my port tubing. So, the kink is tightene when I stand and shuts everything down and apparently having chemotherapy seep into the muscle is not good.

10.10.18 at 11:30 I am having surgery to replace my port and the plan is two week from today to resume chemotherapy.
The good news is with no complictions we can still make the game this weekend.
The great news is I know I am in great hands that has a great plan for me and I place my worries and fears in that; so I am doing well.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » October 10th, 2018, 5:12 pm

Surgery went well. Just moved the port. Apparently I am a liitle more active than some cancer patients so my muscle movements created the kink. The move and a few stitches along the line will keep it from kinking.

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flameshaw
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Re: Changes a comin'

Post by flameshaw » October 10th, 2018, 6:03 pm

CCWMichael wrote:Surgery went well. Just moved the port. Apparently I am a liitle more active than some cancer patients so my muscle movements created the kink. The move and a few stitches along the line will keep it from kinking.
Prayers my friend....................... stay strong.

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Sly Fox
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Re: Changes a comin'

Post by Sly Fox » October 10th, 2018, 11:15 pm

Love hearing the positive reports!

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Re: Changes a comin'

Post by LUDad » October 12th, 2018, 10:17 am

Glad everything got straightened out. Hope you make the game. The team could use your families cheers this week.

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CCWMichael
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Re: Changes a comin'

Post by CCWMichael » October 30th, 2018, 12:21 pm

First things first LUDAD I had sent you a private message in an attempt to meet .... but I see it was not opened yet.... Weather will dictate the next two games for us.

So, this is real. I had another port placed tody. The second placed port did not work. Both of the first two ports were subclavian. This time interventional radiation placed the port and went over the collarbone and went jugular with this one .
One break would be nice. I will find out Friday if this port works as I am scheduled to have a blood draw before my chemo on Monday.

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